As genetic risk information plays an increasingly important role in the diagnosis and treatment of many diseases, private companies have made personal genomic testing for these risk factors widely available to the public. However, very little data has been gathered to understand the motivations and expectations of consumers of personal genomic services, the psychological and behavioral impact of these services, and the associated ethical, legal and social issues—until now. The Impact of Personal Genomics (PGen) Study, one of the first major studies to prospectively examine the impact of consumer genomics, is prepared to launch its data collection phase.
Posts tagged "genomic"
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New study launched investigating the impacts of personal genomic testing →
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“Recreational genomics,” 4 years on →
In an exchange with Mark Shriver, I was pointed to this 2007 position paper in Science, The Science and Business of Genetic Ancestry Testing. It’s an interesting historical artifact. Much of the critique was aimed at AncestrybyDNA, but it can be generalized. Now that 23andMe has ~100,000 customers, have the things which they worried about come to be? Perhaps one of the more curious aspects of all this is that individuals no longer need to rely exclusively on the commercial gatekeepers if they have their raw genotype.
